Emily Kramer-Golinkoff

Emily Kramer-Golinkoff is Co-Founder of Emily’s Entourage, an innovative 501(c)3 that accelerates research for individuals in the final 10 percent of the cystic fibrosis (CF) population that do not benefit from existing mutation-targeted therapies. She is also an internationally recognized patient advocate and speaker.

Since 2011, Emily’s Entourage has awarded millions of dollars in research grants, launched a now-acquired CF gene therapy company, developed a patient database and clinical trial matchmaking program to accelerate clinical trial recruitment, and led worldwide efforts to drive high-impact research and drug development. The organization has been featured in media outlets including The New York Times, STAT, CNN, Yahoo, AOL, People, The Philadelphia Inquirer, and more.